FAQ For Montreal Chapter of Dysautonomia

Who runs the Montreal Chapter of Dysautonomia?

It is completely volunteer run. The board is made up of relatives of those that have FD as well as friends of those families.

What are your activities?

Primarily fundraising and raising awareness about FD and the need to have genetic testing done.

Where does the money go?

Primarily to support clinical work and research. Past recipients have been local Montreal hospitals and

the Familial Dysautonomia Center based at the New York University Hospital. We work in conjunction with the Dysautonomia Foundation to identify potential recipients. In 2006 the chapter became a founding sponsor of the Montreal Jewish Hereditary Disease Fund. See the News page for some details.

Why are there advertisements on this site?

They are the ads supplied by the wiki provider as we are not using their premium service. We apologize if the ads bother you in any way but for the moment we choose not to spend the money when it can be used for research into Familial Dysautonomia. If there are problems due to the ads, then in the future we will review the situation.